Health and Psychology

 

From the field. Consideration of research on Internet: guidelines and implications for human movement studies. (includes abstract) Szabo A; Clinical Kinesiology: Journal of the American Kinesiotherapy Association, 1996 Fall; 50 (3): 58-65 (journal article) CINAHL AN: 1997035460

 

This article elaborates on the idea of considering the research potentials on the Internet in the area of Human Movement Studies. The discussion is generally focused on the type of data collectable via Internet research, the method of investigation, and the possible advantages and disadvantages of research on the Internet. Finally, some ethical guidelines are presented in line with the guidelines established for research with human subjects by the American Psychological Association. It is concluded that the Internet is a tantalizing place to conduct certain forms of research in general as well as specific research in some areas of Human Movement Studies.

 

 

Psychological Research Online:  Report of Board of Scientific Affairs' Advisory Group on the Conduct of Research on the Internet.. By: Kraut, Robert; Olson, Judith; Banaji, Mahzarin; Bruckman, Amy; Cohen, Jeffrey; Couper, Mick. American Psychologist, Feb/Mar2004, Vol. 59 Issue 2, p105-117, 13p; DOI: 10.1037/0003-066X.59.2.105; (AN 12464222)

 

As the Internet has changed communication, commerce, and the distribution of information, so too it is changing psychological research. Psychologists can observe new or rare phenomena online and can do research on traditional psychological topics more efficiently, enabling them to expand the scale and scope of their research. Yet these opportunities entail risk both to research quality and to human subjects. Internet research is inherently no more risky than traditional observational, survey, or experimental methods. Yet the risks and safeguards against them will differ from those characterizing traditional research and will themselves change over time. This article describes some benefits and challenges of conducting psychological research via the Internet and offers recommendations to both researchers and institutional review boards for dealing with them. [ABSTRACT FROM AUTHOR]

 

 

Ohrstrom P, Dyhrberg J.

Ethical problems inherent in psychological research based on internet communication as stored information.

Theor Med Bioeth. 2007;28(3):221-41.

PMID: 17690996 [PubMed - indexed for MEDLINE]

 

This paper deals with certain ethical problems inherent in psychological research based on internet communication as stored information. Section 1 contains an analysis of research on Internet debates. In particular, it takes into account a famous example of deception for psychology research purposes. In section 2, the focus is on research on personal data in texts published on the Internet. Section 3 includes an attempt to formulate some ethical principles and guidelines, which should be regarded as fundamental in research on stored information.

 

 

Ethics Behav. 2003;13(1):45-60.

Internet research: an opportunity to revisit classic ethical problems in behavioral research.

Pittenger DJ.

 

The Internet offers many new opportunities for behavioral researchers to conduct quantitative and qualitative research. Although the ethical guidelines of the American Psychological Association generalize, in part, to research conducted through the Internet, several matters related to Internet research require further analysis. This article reviews several fundamental ethical issues related to Internet research, namely the preservation of privacy, the issuance of informed consent, the use of deception and false feedback, and research methods. In essence, the Internet offers unique challenges to behavioral researchers. Among these are the need to better define the distinction between private and public behavior performed through the Internet, ensure mechanisms for obtaining valid informed consent from participants and performing debriefing exercises, and verify the validity of data collected through the Internet.

 

 

Annu Rev Psychol. 2006;57:529-55.

The internet as psychological laboratory.

Skitka LJ, Sargis EG.

 

This chapter reviews studies published in American Psychological Association (APA) journals from 2003-2004 and additional studies (received in response to listserv requests) that used the Internet to collect data (N=121 total studies). Specific examples of three kinds of Web-based research are reviewed: (a) translational (established methods and research questions are adapted to the Web), (b) phenomenological (behavior on the Web is the focus of study), and (c) novel (methodologically innovations unique to Web-based research). Among other findings, our review indicated that 21% of APA journals published at least one article that reported on Web-based research, most Web-based psychological research uses experimental methods, a surprising number use college student samples, and deception in Web-based research is not uncommon. Strengths and weaknesses of Web-based psychological research in general, and our sample of studies in particular, are reviewed with special attention to possible concerns about sampling and the use of deception.

 

 

The emerging relationship of psychology and the Internet: proposed guidelines for conducting Internet intervention research. (eng; includes abstract) By Childress CA, Ethics & Behavior [Ethics Behav], 1998; Vol. 8 (1), pp. 19-35; PMID: 11655352

 

The Internet is rapidly developing into an important medium of communication in modern society, and both psychological research and therapeutic interventions are being increasingly conducted using this new communication medium. As therapeutic interventions using the Internet are becoming more prevalent, it is becoming increasingly important to conduct research on psychotherapeutic Internet interventions to assist in the development of an appropriate standard of practice regarding interventions using this new medium. In this article, we examine the Internet and the current psychological uses which are being initiated using this medium. Ethical concerns related to the psychological use of the Internet are discussed, and guidelines are proposed for the conduct of Internet intervention research.

 

 

Chiasson MA, Parsons JT, Tesoriero JM, Carballo-Dieguez A, Hirshfield S, Remien RH.

HIV behavioral research online.

J Urban Health. 2006 Jan;83(1):73-85. Review.

PMID: 16736356 [PubMed - indexed for MEDLINE]

 

Internet access has caused a global revolution in the way people of all ages and genders interact. Many have turned to the Internet to seek love, companionship, and sex, prompting researchers to move behavioral studies online. The sexual behavior of men who have sex with men (MSM) has been more closely studied than that of any other group online given the abundance of gay-oriented websites and concerns about increasing transmission of HIV and other sexually transmitted infections. Not only does the Internet provide a new medium for the conduct of behavioral research and for participant recruitment into an array of research studies, it has the as yet unrealized potential to reach huge numbers of MSM with innovative harm reduction and prevention messages tailored to individualized needs, interests, and risk behavior. Internet-based research on sexual behavior has many advantages in rapidity of recruitment of diverse samples which include individuals unreachable through conventional methods (i.e., non-gay identified and geographically and socially isolated MSM, etc.). Internet-based research also presents some new methodologic challenges in study design, participant recruitment, survey implementation, and interpretation of results. In addition, there are ethical issues unique to online research including difficulties in verifying informed consent, obstacles to surveying minors, and the ability to assure anonymity. This paper presents a review of Internet-based research on sexual behavior in MSM, a general discussion of the methodologic and ethical challenges of Internet-based research, and recommendations for future interdisciplinary research.

 

 

Till JE.

Policing of information from internet breast cancer list: "list mining" raises new issues in research ethics.

BMJ. 2006 May 6;332(7549):1095. No abstract available.

PMID: 16675828 [PubMed - indexed for MEDLINE]

 

NO ABSTRACT

 

 

Methodological and ethical issues in Internet-mediated research in the field of health: an integrated review of the literature. (includes abstract) Whitehead LC; Social Science & Medicine, 2007 Aug; 65 (4): 782-91 (journal article) CINAHL AN: 2009660094

 

The advantages and disadvantages of using the Internet in both qualitative and quantitative researches in the field of health are readily available in the literature, but little examination has been made of the factors to be considered in developing and running Internet-mediated research. A bibliographic search of English language publications indexed in eight computerized databases (EBSCO, EMBASE, MedLine, PsycInfo, CINAHL, PubMed, Cochrane, and TRIP) was undertaken with no limit set for the data of publication. The keywords Internet, research, quality, credibility, reliability, and validity were used in all possible combinations, and mappings to headings made wherever possible. The search revealed three key areas in setting up and undertaking Internet-mediated research: addressing sampling biases, ensuring ethical practice, and exploring the validity of data collected using an online interface. This paper contributes to the ongoing development of quality standards in the conduct and write-up of Internet-mediated research in the field of health.

 

 

 

 

Ethical Issues in Conducting Sex Research on the Internet. By: Binik, Yitzchak M.; Mah, Kenneth; Kiesler, Sara. Journal of Sex Research, Feb99, Vol. 36 Issue 1, p82-90, 9p; (AN 1642759)

 

This article examines the ethical issues in conducting sex research on the Internet. The growth and popularity of personal Internet services allow for novel investigations of sexuality at home, in the absence of physical presence and under conditions of relative anonymity. By making use of existing or experimental on-line sex therapists and sexual self-help or entertainment groups researchers can study topics such as interpersonal attraction, flirting, sexual language sexual self-help, sexual writing, role playing and therapeutic relationships. Sexologists interested in the use and effects of sexual images are hard pressed to find a better research environment than the Internet. Researchers can present sexual stimuli on the Web, run interactive virtual experiments, or study people's access to existing sexual material, even recording responses using automated psychophysiological measures that connect participants with a central laboratory through the Internet. Sex researchers have begun to use the Internet to recruit participants who otherwise may be difficult to recruit locally.

 

Baker, D, Author, Reprint Author Baker Darren Baker, Darren

Research, ethics and the internet

PSYCHOLOGIST 20 (8): 473-473 AUG 2007 

 

NO ABSTRACT

 

 

Nosek, B. A., et. al., E-research: ethics, security, design, and control in psychological research on the Internet. The Journal of Social Issues v. 58 no. 1 (Spring 2002) p. 161-76

 

Differences between traditional laboratory research and Internet-based research require a review of basic issues of research methodology. These differences have implications for research ethics (e.g., absence of researcher, potential exposure of confidential data and/or identity to a third party, guaranteed debriefing) and security (e.g., confidentiality and anonymity, security of data transmission, security of data storage, and tracking participants over time). We also review basic design issues a researcher should consider before implementing an Internet study, including the problem of participant self-selection and loss of experimental control on the Internet laboratory. An additional challenge for Internet-based research is the increased opportunity for participant misbehavior, intentional or otherwise. We discuss methods to detect and minimize these threats to the validity of Internet-based research. Reprinted by permission of the publisher.

 

 

Riggle, E. D. B., et. al., Online Surveys for BGLT Research: Issues and Techniques. Journal of Homosexuality v. 49 no. 2 (2005) p. 1-21

 

Online surveys are becoming increasingly popular for accessing less visible and decentralized populations, including bisexual, gay, lesbian and transgender (BGLT) populations. Advances in technology and convenience for the both the researcher and the participant have facilitated this trend. In this paper, we explore issues related to conducting BGLT survey research online, such as making decisions about survey formats, target populations and recruitment, compensation, access, and privacy. We also discuss technical issues related to online surveys and their implications for confidentiality and informed consent. Reprinted by permission of the publisher.

 

 

Ethical issues in the documentary data analysis of Internet posts and archives. (eng; includes abstract) By Sixsmith J, Qualitative Health Research [Qual Health Res], 2001 May; Vol. 11 (3), pp. 423-32; PMID: 11339083

 

The documentary analysis of e-mail posts and archives for qualitative research has been outlined elsewhere. Although there is an increase in the number of studies being conducted on listserv and newsgroup material in health research, this has not always been accompanied by a careful, in-depth consideration of the concomitant ethical issues. Therefore, this article outlines the ethical considerations surrounding this form of research, including issues of accessing voices, consent, privacy, anonymity, interpretation, and ownership and authorship of research material.

 

 

Human subjects issues in Internet research. (eng) By Cohen JM, Health Law News. University Of Houston. Health Law And Policy Institute [Health Law News], 2000 Jun; Vol. 13 (3), pp. 5, 14; PMID: 12542043

 

NO ABSTRACT

 

 

Doing synchronous online focus groups with young people: methodological reflections. (eng; includes abstract) By Fox FE, Qualitative Health Research [Qual Health Res], 2007 Apr; Vol. 17 (4), pp. 539-47; PMID: 17416707

 

Although online focus groups are emerging as a worthwhile methodological approach for qualitative researchers, reporting has been constrained in several ways. The majority of studies report asynchronous groups, whereas others employ synchronous exchanges, the efficacy of which with young people has seldom been explored. Considering the popularity of the Internet as a communication tool for young people, this missed opportunity is surprising. Based on a series of synchronous online focus groups with young people, the authors explore why this approach might be an effective way of engaging young people with appearance-related concerns in research. In this article, they discuss the process of hosting and moderating synchronous online focus groups, highlighting some of the ethical, pragmatic, and personal challenges that might face researchers using this method. Through a reflexive approach, they intend to inform and encourage qualitative researchers to consider alternative ways of engaging young people in research.

 

 

Issues surrounding the use of the Internet for data collection. (eng) By Klein J, The American Journal Of Occupational Therapy.: Official Publication Of The American Occupational Therapy Association [Am J Occup Ther], 2002 May-Jun; Vol. 56 (3), pp. 340-3; PMID: 12058524

 

NO ABSTRACT

 

 

 

Conducting Internet-based HIV/STD prevention survey research: considerations in design and evaluation. (eng; includes abstract) By Pequegnat W, AIDS And Behavior [AIDS Behav], 2007 Jul; Vol. 11 (4), pp. 505-21; PMID: 17053853

 

The aim of this paper is to advance rigorous Internet-based HIV/STD Prevention quantitative research by providing guidance to fellow researchers, faculty supervising graduates, human subjects' committees, and review groups about some of the most common and challenging questions about Internet-based HIV prevention quantitative research. The authors represent several research groups who have gained experience conducting some of the first Internet-based HIV/STD prevention quantitative surveys in the US and elsewhere. Sixteen questions specific to Internet-based HIV prevention survey research are identified. To aid rigorous development and review of applications, these questions are organized around six common criteria used in federal review groups in the US: significance, innovation, approach (broken down further by research design, formative development, procedures, sampling considerations, and data collection); investigator, environment and human subjects' issues. Strategies promoting minority participant recruitment, minimizing attrition, validating participants, and compensating participants are discussed. Throughout, the implications on budget and realistic timetabling are identified.

 

 

Summary of Issues and Challenges in the Use of New Technologies in Clinical Care and With Children and Adolescents With Chronic Illness. By: Drotar, Dennis; Greenley, Rachel; Hoff, Ahna; Johnson, Courtney; Lewandowski, Amy; Moore, Melisa; Spilsbury, James; Witherspoon, Dawn; Zebracki, Kathy. Children's Health Care, Spring2006, Vol. 35 Issue 1, p91-102, 12p; DOI: 10.1207/s15326888chc3501_8; (AN 20296574)

 

New technologies such as telehealth and Internet-based interventions provide powerful methods of clinical intervention and research with pediatric populations, especially children with chronic health conditions. Barriers to utilization of these technologies include the experiences and attitudes of professionals and families, ethical concerns about privacy and confidentiality resources, and control. The utilization of new technologies will be promoted by addressing resistance toward and discomfort of new technology, enhancing ways of providing information via technology, and facilitating education efforts within the general population. Recommendations to advance research concerning new technologies include the following: (a) develop benchmarks for evaluations, (b) use quantitative and qualitative approaches, (c) conduct theory-guided research, (d) study the cost benefits of different technologies, (e) document the impact of technologies on comprehensive outcomes, and (f) facilitate multisite research collaboration. [ABSTRACT FROM AUTHOR]

 

 

Getting Wired: Exploiting the Internet for the Collection of Valid Sexuality Data. By: Mustanski, Brian S.. Journal of Sex Research, Nov2001, Vol. 38 Issue 4, p292, 10p; (AN 6467005)

 

This paper explores the use of the Internet as a data collection method for sexuality research. Benefits, such as larger, more representative samples, and risks to validity, such as lying and sabotage, are discussed in the context of a large Internet-based study of how "having sex" is defined by gay, lesbian, and bisexual college students. Suggestions for how to maximize utility as well as combat potential risks and ethical dilemmas are offered. Special attention is paid to the use of the Internet to collect data from traditionally underrepresented groups. The article ends with a look to the future of sex research over the Internet, exploring the collection of nonsurvey data. [ABSTRACT FROM AUTHOR]

 

 

Medical internet ethics: a field in evolution. (eng; includes abstract) By Dyer KA, Medinfo. MEDINFO [Medinfo], 2001; Vol. 10 (Pt 2), pp. 1287-91; PMID: 11604935

 

As in any new field, the merger of medicine, e-commerce and the Internet raises many questions pertaining to ethical conduct. Key issues include defining the essence of the patient-provider relationship, establishing guidelines and training for practicing online medicine and therapy, setting standards for ethical online research, determining guidelines for providing quality healthcare information and requiring ethical conduct for medical and health websites. Physicians who follow their professional code of ethics are obligated not to exploit the relationship they have with patients, nor allow anyone else working with them to do so. Physicians and therapists are obligated to serve those who place trust in them for treatment, whether in face-to-face or online Internet encounters with patients or clients. This ethical responsibility to patients and clients is often in direct conflict with the business model of generating profits. Healthcare professionals involved in Medical Internet Ethics need to define the scope of competent medical and healthcare on the Internet. The emerging ethical issues facing medicine on the Internet, the current state of medical ethics on the Internet and questions for future directions of study in this evolving field are reviewed in this paper.

 

 

 

Qualitative Health Research, Vol. 17, No. 4, 539-547 (2007)

DOI: 10.1177/1049732306298754

© 2007 SAGE Publications

Doing Synchronous Online Focus Groups With Young People

Methodological Reflections

Fiona E. Fox

The University of the West of England, Bristol, United Kingdom

Marianne Morris

The University of the West of England, Bristol, United Kingdom

Nichola Rumsey

The University of the West of England, Bristol, United Kingdom

 

Although online focus groups are emerging as a worthwhile methodological approach for qualitative researchers, reporting has been constrained in several ways. The majority of studies report asynchronous groups, whereas others employ synchronous exchanges, the efficacy of which with young people has seldom been explored. Considering the popularity of the Internet as a communication tool for young people, this missed opportunity is surprising. Based on a series of synchronous online focus groups with young people, the authors explore why this approach might be an effective way of engaging young people with appearance-related concerns in research. In this article, they discuss the process of hosting and moderating synchronous online focus groups, highlighting some of the ethical, pragmatic, and personal challenges that might face researchers using this method. Through a reflexive approach, they intend to inform and encourage qualitative researchers to consider alternative ways of engaging young people in research.

 

 

 

Ethical Dilemmas in Research on Internet Communities. By: Flicker, Sarah; Haans, Dave; Skinner, Harvey. Qualitative Health Research, Jan2004, Vol. 14 Issue 1, p124-134, 11p, 4 charts; DOI: 10.1177/1049732303259842; (AN 12395020)

 

There has been a rapid growth in the number of articles using Internet data sources to illuminate health behavior. However, little has been written about the ethical considerations of online research, especially studies involving data from Internet discussion boards. Guidelines are needed to ensure ethical conduct. In this article, the authors examine how a youth-focused research program negotiated ethical practices in the creation of its comprehensive health site and online message board. They address three situations in which ethical predicaments arose: (a) enrolling research participants, (b) protecting participants from risk or harm, and (c) linking public and private data. Drawing on the ethical principles of autonomy, nonmaleficence, justice, and beneficence, the authors present practical guidelines for resolving ethical dilemmas in research on Internet communities. [ABSTRACT FROM AUTHOR]

 

 

 

E-Research: Ethics, Security, Design, and Control in Psychological Research on the Internet. By: Nosek, Brian A.; Banaji, Mahzarin R.; Greenwald, Anthony G.. Journal of Social Issues, Jan2002, Vol. 58 Issue 1, p161, 16p; (AN 6194715)

 

Differences between traditional laboratory research and Internet-based research require a review of basic issues of research methodology. These differences have implications for research ethics (e.g., absence of researcher, potential exposure of confidential data and/or identity to a third party, guaranteed debriefing) and security (e.g., confidentiality and anonymity, security of data transmission, security of data storage, and tracking participants over time). We also review basic design issues a researcher should consider before implementing an Internet study, including the problem of participant self-selection and loss of experimental control on the Internet laboratory. An additional challenge for Internet-based research is the increased opportunity for participant misbehavior, intentional or otherwise. We discuss methods to detect and minimize these threats to the validity of Internetbased research. [ABSTRACT FROM AUTHOR]

 

 

Ethical issues in qualitative research on Internet communities. By: Eysenbach, Gunther; Till, James E. BMJ: British Medical Journal, 11/10/2001, Vol. 323 Issue 7321, p1103, 3p; (AN 5477790)

 

Discusses the Internet as a source of information on patient concerns and opinions for physicians. Issues of informed consent and privacy in Internet research; Details of Internet communities; Qualitative research on the Internet; Question whether Internet communities are private of public communications; How to obtain informed consent from Internet communities.

 

 

The Dark Side of Truth(s): Ethical Dilemmas in Researching the Personal. By: Clark, M. Carolyn; Sharf, Barbara F.. Qualitative Inquiry, Apr2007, Vol. 13 Issue 3, p399-416, 18p; (AN 24686809)

 

This article explores the sometimes problematic issue of truth when conducting qualitative research on people's lives. Four ethical dilemmas are presented relating to the potentially harmful consequences of truth encountered by the authors in their own research: a promise to share the analysis of a patient's medical record containing unflattering comments by her physicians; the unintended sharing of a traumatic event, held secret since its occurrence, by a woman inmate; a disagreement with the Institutional Review Board over what constitutes ethical practice in online research; and an interview with a recently released political dissident in a totalitarian country. The authors advocate for multiple venues in which qualitative researchers can discuss ethical dilemmas such as these to learn from one another's experience and together develop a more reflexive practice. [ABSTRACT FROM AUTHOR]

 

Unsolicited Narratives from the Internet: A Rich Source of Qualitative Data. By: Robinson, Katherine Morton. Qualitative Health Research, Sep2001, Vol. 11 Issue 5, p706, 9p, 1 diagram; (AN 5812209)

 

Recently, the Internet has become a forum for informal communication. Many—whose voices may have been unheard—can now express themselves through this medium. Rich narratives are available to the qualitative researcher from bulletin boards, guest books, Web pages, and listservs on the Internet. In this article, these data sources are defined and described. Strategies for using these data are discussed. One concern with using unsolicited data from the Internet is the protection of human subjects and the requirement for consent. A proposed model describing the process for deciding when such data are publicly available, as defined by the Office for the Protection of Rights of Research Subjects, and when the use of the data requires consent is presented. [ABSTRACT FROM AUTHOR]

 

 

Ethics Behav. 2003;13(3):211-9.

Ethical issues surrounding human participants research using the Internet.

Keller HE, Lee S.

 

The Internet appears to offer psychologists doing research unrestricted access to infinite amounts and types of data. However, the ethical issues surrounding the use of data and data collection methods are challenging research review boards at many institutions. This article illuminates some of the obstacles facing researchers who wish to take advantage of the Internet's flexibility. The applications of the APA ethical codes for conducting research on human participants on the Internet are reviewed. The principle of beneficence, as well as privacy and confidentiality, informed consent, deception, and avoiding harm are all illustrated through the use of a hypothetical online study.

 

 

Wood RT, Griffiths MD, Eatough V.

Online data collection from video game players: methodological issues.

Cyberpsychol Behav. 2004 Oct;7(5):511-8. Review.

PMID: 15667045 [PubMed - indexed for MEDLINE]

 

The paper outlines the advantages and disadvantages of using the Internet to collect data concerning both online and offline gamers. Drawing from experience of a number of studies carried out online by the authors and by reviewing the available literature, the authors discuss the main issues concerning data collected from video game players. The paper examines a number of areas, including recruiting and utilizing participants, validity, suitable methods of data collection (i.e., questionnaire studies, online tests, participant observation, online interviews), and ethical issues. It is concluded that online research methods can be a useful way of examining the psychosocial aspects of video game playing.

 

 

 

A Culturally Appropriate, Web-Based Technology for Anonymous Data Collection for Public Health Research in Culturally Diverse Populations

Douma, Michael; Gamito, Eduard J

Journal of Cases on Information Technology. Vol. 9, no. 3, pp. 15-26. July-Sept. 2007

 

 

This case study describes how a Web-based technology helped a small nonprofit cancer education and research organization collect data anonymously from Native American cancer survivors from across the North American continent. The system described herein, known as the Privacy Broker System, is adaptable to different cultures and languages. The Privacy Broker System made cancer education and research, which was previously infeasible due to high costs and regulatory constraints, possible.

 

 

 

Im, E. O., et. al., Issues in an Internet survey among midlife Asian women. Health Care for Women International v. 25 no. 2 (February 2004) p. 158-64

 

Possible future directions for Internet use in women's health research are considered by examining the practical issues that were raised in an Internet-based study on menopausal symptoms among midlife Asian women in the U.S. The survey of 62 women identified a number of practical issues associated with using the Internet as a data-collection tool. These included potential selection biases, ethical concerns, a low response rate, frequent consultations, and potential data entry errors. Future directions in women's health research using the Internet as a recruitment or a data collection method are discussed.

 

 

Wharton, C. M., et. al., PCs or paper-and-pencil: Online surveys for data collection. Journal of the American Dietetic Association v. 103 no. 11 (November 2003) p. 1458, 1460

 

The Internet is a powerful data collection tool for survey-based research. The Internet offers many advantages as a data collection tool: Internet-based surveys offer lower overall costs, greater speed in survey distribution and collection, potentially better response rates, fewer response errors, and more complete responses overall. The Internet allows for a sense of social distance so that research subjects may respond more openly. There are some potential pitfalls when using the Internet in research, including its uncontrolled environment, potential lack of anonymity and data security, layout differences of Internet-based surveys due to low-end technology and different Web browser programs and settings, and accessibility issues that call into question the generalizability of data. Nevertheless, growing research suggests that there is little or no difference in accurate reporting of information from online surveys as compared with paper-and-pencil surveys.

 

Collecting behavioural data using the world wide web: Considerations for researchers 

Author: Rhodes S.D.; Bowie D.A.; Hergenrather K.C. Source: Journal of Epidemiology and Community Health 57, no.1 (01 JAN 2003) p. 68-73

 

Objective: To identify and describe advantages, challenges, and ethical considerations of web based behavioural data collection. Methods: This discussion is based on the authors' experiences in survey development and study design, respondent recruitment, and internet research, and on the experiences of others as found in the literature. Results: The advantages of using the world wide web to collect behavioural data include rapid access to numerous potential respondents and previously hidden populations, respondent openness and full participation, opportunities for student research, and reduced research costs. Challenges identified include issues related to sampling and sample representativeness, competition for the attention of respondents, and potential limitations resulting from the much cited "digital divid&equot;, literacy, and disability. Ethical considerations include anonymity and privacy, providing and substantiating informed consent, and potential risks of malfeasance. Conclusions: Computer mediated communications, including electronic mail, the world wide web, and interactive programs will play an ever increasing part in the future of behavioural science research. Justifiable concerns regarding the use of the world wide web in research exist, bur as access to, and use of, the internet becomes more widely and representatively distributed globally, the world wide web will become more applicable. In fact, the world wide web may be the only research tool able to reach some previously hidden population subgroups. Furthermore, many of the criticisms of online data collection are common to other survey research methodologies.

 

 

E-research: Ethics, security, design, and control in psychological Research on the internet

Nosek A. B.A.;  Banaji R. M.R.;  Greenwald G. A.G.

2002

English Journal

Journal of Social Issues, 58, no.1 (2002) p. 161-176

 

Differences between traditional laboratory research and Internet-based research require a review of basic issues of research methodology. These differences have implications for research ethics (e.g., absence of researcher, potential exposure of confidential data and/or identity to a third party, guaranteed debriefing) and security (e.g., confidentiality and anonymity, security of data transmission, security of data storage, and tracking participants over time). We also review basic design issues a researcher should consider before implementing an Internet study, including the problem of participant self-selection and loss of experimental control on the Internet laboratory. An additional challenge for Internet-based research is the increased opportunity for participant misbehavior, intentional or otherwise. We discuss methods to detect and minimize these threats to the validity of Internet-based research.

 

Ethical Issues for Qualitative Research in On-line Communities Authors: Brownlow C.; O'Dell L.  Source: Disability & Society, Volume 17, Number 6, 1 October 2002 , pp. 685-694(10)

 

Recent years have witnessed a rapid growth in Internet technologies, which offer new possibilities for researching hard to reach groups. However, research guidelines, which could aid research in this new forum, have not yet been fully developed. The focus of the article will be ethical issues that may arise from using the Internet as a research tool if we are to protect and respect our participants. Questions surrounding gaining informed consent, privacy of participants and new power differentials, which may arise through interaction in an on-line forum, are raised. These are supplemented by reflections from work conducted by the authors using on-line discussion formus as method of research with people with autism.